My full story is in a book published to Amazon.com titled: “Patient MalPractice:Degenerative Retinoschisis”
03/13/2010: During a routine visit for reading glasses, an optometrist pops the question: "Do you want me to check your retina?", I said yes.
He refers me to a retina specialist for a “possible retinal detachment”. He does not mention Retinoschisis to me, he only talks about the dangers of a retinal detachment.
He wrote:
“Retinoschisis???”
to the medical records but I am in the dark about Retinoschisis until I requested my medical records more than two years later when it was too late.
Having no symptoms of any kind, I decided not to go to the specialist.
05/09/11: I come back to the same optometrist.
He refers me again to a retina specialist for a “possible retinal detachment”. Again, He does not mention Retinoschisis to me, he only talks about the dangers of a retinal detachment.
He again wrote “Retinoschisis??? to the medical records but I am in the dark until I requested my medical records more than two years later when it was too late.
Having no symptoms of any kind, I decided again not to go to the specialist.
12/21/2012: While doing corneal crosslinking, the cornea doctor checks my retina. He says “there is something there”, I told him that my optometrist has asked me twice in almost three years to check on that but I have not seen any specialist.
Same thing happens, he only talks about the dangers of a retinal detachment without mentioning Retinoschisis to me and calls in a retina specialist from the same hospital to check my retina.
He wrote to my medical records “schisis or detachment?” “will have retina eval today”, but I was in the dark about retinoschisis until I requested my medical records more than two years later.
12/21/2012: When I ask the retina specialist “What did you find?”, he answers “It’s hard to explain, you have these splits and these holes, sometimes something happens , sometimes nothing happens, we need to monitor it because “if the macula comes off”, “when the macula comes off”. “if the macula comes off”. He would only scare me about a macula off detachment but he never mentioned Retinoschisis to me. But this is what he wrote to the medical records:
“Retinoschisis stable”
He wants to see me in a month but I come back almost two years later on 05/05/2014
05/05/2014: I come back to follow up on the “see your retinoschisis next month” scheduled on 12/21/2012
I ask how is my right eye (the eye with the “problem”) and he says “still okay”
then I say, “how about the left eye”, he says: “the left eye it’s okay”
More than two years later, When I requested my medical records I realized that, while telling me, “your left eye is okay”, this is what he wrote to the medical records:
“This is a 46 year male, he came to monitor his lattice degeneration in both eyes”. He wrote five diseases to the medical records but did not disclose verbally to me any of them:
"PVD", "CHRPE", "Retinoschisis", "Lattice Degeneration" and "Dystrophies involving the retinal pigment"